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#1 14-12-2006 13:53:20

jupilette
Petit nouveau
Lieu: Belgique
Date d'inscription: 14-12-2006
Messages: 4

J'ai une aplasie médullaire et suis perdue...

Tout a commencé par des taches noires dans les yeux début septembre... après deux mois de cortisone et d'immuno suppresseurs, c'est mon état général qui s'est détérioré.  On a fait une ponction de la moelle osseuse et on a découvert que je souffrais d'aplasie médullaire. Je n'avais plus de globules rouges et plus aucune plaquette... J'ai eu 4 perfusions et flashes de cortisone sur ma semaine. Mon hématologue se demande si j'ai fait cette aplasie à cause de cet immuno suppresseur (Imuran) qui a tout détruit dans le système immunitaire. J'en ai pris pendant exactement 6 semaines.  ou alors si c'est une maladie auto immune...
Maintenant j'ai quitté l'hopital et mes globules, plaquettes ont augmenté meme si toujours en dessous de la norme.  Hier, j'ai fait une rechute au niveau de l'hémoglobine et des globules rouges.  j'ai changé d'immuno suppresseurs (Néoral) et je prends toujours de la cortisone. Est-il possible que cet immuno suppresseur soit encore la cause de cette petite baisse? J'en ai marre et je ne sais plus quoi penser de tout ça... Si quelqu'un peut m'aider...

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#2 14-12-2006 15:14:12

jennifer
Membre confirmé
Lieu: Metz
Date d'inscription: 02-12-2006
Messages: 40

Re: J'ai une aplasie médullaire et suis perdue...

Bonjour,

Voilà j'ai fait une petite recherche et il semblerait que  l'Azathioprine, substance contenue dans l'Imuran, pourrait provoquer dans de rares cas une aplasie médullaire et anémie.

Ton médecin en pense quoi?

Je ne peux malheureusement pas beaucoup t'aider, mais si tu veux parler je suis là.

Bon courage et bonne journée

Dernière modification par jennifer (14-12-2006 15:19:20)

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#3 14-12-2006 15:21:14

destivic
Administrateur
Lieu: Nantes
Date d'inscription: 30-11-2006
Messages: 140
Site web

Re: J'ai une aplasie médullaire et suis perdue...

Je vais faire une recherche au plus vite sur ce traitement, je te ferais parvenir ce que je trouve ou j'ajouterais un lien sur le site ou un autre site.

Bonne journée,  et bon courage...


(je rajoute un espace traitement,  afin de pour voir expliquer différents traitementsN'hésitez pas à lancer vous même des sujets sur des traitements ou autres)


_________________________
*************************
L'avenir est une solution...   wink

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#4 14-12-2006 15:52:48

destivic
Administrateur
Lieu: Nantes
Date d'inscription: 30-11-2006
Messages: 140
Site web

Re: J'ai une aplasie médullaire et suis perdue...

Des informations sur l'Imuran sont disponibles sur le forum dans : LES TRAITEMENTS.

Pour y accéder, cliquer ICI


_________________________
*************************
L'avenir est une solution...   wink

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#5 14-12-2006 19:06:31

jupilette
Petit nouveau
Lieu: Belgique
Date d'inscription: 14-12-2006
Messages: 4

Re: J'ai une aplasie médullaire et suis perdue...

Mon hématologue pensait d'abord à une maladie auto immune puis a pensé à l'Imuran mais n'a aucune certitude car il dit que pour etre efficace l'Imuran doit etre pris au moins pendant 8 semaines et j'en ai pris que pendant 6 semaines.  J'espère que le Néoral n'a pas aussi ça comme effet secondaire car suis en train de faire rechute dans hémoglobine et globules rouges....

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#6 14-12-2006 20:52:27

destivic
Administrateur
Lieu: Nantes
Date d'inscription: 30-11-2006
Messages: 140
Site web

Re: J'ai une aplasie médullaire et suis perdue...

Bonsoir Jupilette, 

Tu trouveras des infos sur le Néoral en cliquant sur le lien ci-dessous :


Cliquer ICI


_________________________
*************************
L'avenir est une solution...   wink

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