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bonjour,
je viens vs faire part d'une maladie genetique rare ,appelée minkowski-chauffard ou spherocytose héréditaire.
C'est une maladie caracterisée par une anomalie de la menbrane des globules rouges,entrainant une anémie hémolitique chronique.
Vous pourrez avoir toutes les infos sur le lien suivant:
http://www.orpha.net/data/patho/Pub/fr/ … ub3252.pdf
je suis a la recherche de malades dans le but de creer une association.
je remercie par avance toutes les personnes qui prendraient contact avec moi et qui seraient intéréssées.
Dernière modification par lana42 (19-11-2009 22:22:18)
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